Publications

Publications on feasibility, design and study retention of the NET-QUBIC longitudinal cohort study

  • Verdonck-de Leeuw (AmsterdamUMC) et al. Advancing interdisciplinary research in head and neck cancer through a multicenter longitudinal prospective cohort study: the NETherlands QUality of life and BIomedical Cohort (NET-QUBIC) data warehouse and biobank. BMC Cancer 2019. https://pubmed.ncbi.nlm.nih.gov/31382921/
  • van Nieuwenhuizen (AmsterdamUMC) et al. A Comprehensive Assessment Protocol Including Patient Reported Outcomes, Physical Tests, and Biological Sampling in Newly Diagnosed Patients With Head and Neck Cancer: Is It Feasible? Support Care Cancer 2014. https://pubmed.ncbi.nlm.nih.gov/25110298/
  • Jansen (AmsterdamUMC) et al. Study retention and attrition in a longitudinal cohort study including patient reported outcomes, fieldwork and biobank samples: results of the Netherlands quality of life and Biomedical cohort study (NET-QUBIC) among 739 head and neck cancer patients and 262 informal caregivers. BMC Med Res Methodol 2022 https://pubmed.ncbi.nlm.nih.gov/35065597/
  • Verdonck-de Leeuw (AmsterdamUMC) et al. Het bevorderen van interdisciplinair onderzoek op het gebied van hoofd halskanker door een multicenter longitudinale prospectieve cohortstudie: het ‘Netherlands quality of life and Biomedical Cohort’ (NET-QUBIC) datawarehouse en biobank. NTvO 2022.

Publications using NET-QUBIC data

2024

2023

  • Stone (AmsterdamUMC) et al. Changes in Sexuality and Sexual Dysfunction over Time in the First Two Years after Treatment of Head and Neck Cancer. Cancers 2023. https://pubmed.ncbi.nlm.nih.gov/37835448/
  • Verdonck-de Leeuw (AmsterdamUMC) et al. The course of health-related quality of life in the first 2 years after a diagnosis of head and neck cancer: the role of personal, clinical, psychological, physical, social, lifestyle, disease-related, and biological factors. Support Care Cancer 2023. https://pubmed.ncbi.nlm.nih.gov/37432446/
  • Molenaar (AmsterdamUMC) et al. Changes in supportive care needs over time from diagnosis up to two years after treatment in head and neck cancer patients: A prospective cohort study. Oral Oncology Reports 2023. https://www.sciencedirect.com/science/article/pii/S2772906023000377
  • Lissenberg-Witte (AmsterdamUMC) et al. The impact of the COVID-19 pandemic on health-related quality of life in head and neck cancer survivors: An observational cohort study. Oral Oncology Reports 2023. https://www.sciencedirect.com/science/article/pii/S2772906023000493
  • Van Hof (ErasmusMC) et al. Unmet supportive care needs among informal caregivers of patients with head and neck cancer in the first 2 years after diagnosis and treatment: a prospective cohort study. Support Care Cancer 2023.  https://pubmed.ncbi.nlm.nih.gov/37052712/
  • Ninfa (University of Milan) et al. The Change in Social Eating over Time in People with Head and Neck Cancer Treated with Primary (Chemo)Radiotherapy: The Role of Swallowing, Oral Function, and Nutritional Status. Cancer 2023. https://pubmed.ncbi.nlm.nih.gov/36900393/
  • Van Hof (ErasmusMC) et al. Self-efficacy and coping style in relation to psychological distress and quality of life in informal caregivers of patients with head and neck cancer: a longitudinal study. Support Cancer Care 2023. https://pubmed.ncbi.nlm.nih.gov/36622506/

2022

  • Van Hof (ErasmusMC) et al. Caregiver Burden, Psychological Distress and Quality of Life among Informal Caregivers of Patients with Head and Neck Cancer: A Longitudinal Study. Int J Environ Res Public Health 2022. https://pubmed.ncbi.nlm.nih.gov/36498377/
  • Santoso (AmsterdamUMC) et al. Psychoneurological Symptoms and Biomarkers of Stress and Inflammation in Newly Diagnosed Head and Neck Cancer Patients: A Network Analysis Curr Oncol 2022. https://pubmed.ncbi.nlm.nih.gov/36290836/
  • In ’t Veld (AmsterdamUMC) et al. Detection and localization of early- and late-stage cancers using platelet RNA. Cancer Cell 2022. https://pubmed.ncbi.nlm.nih.gov/36055228/
  • Van Beek (AmsterdamUMC) et al. Psychological Problems among Head and Neck Cancer Patients in Relation to Utilization of Healthcare and Informal Care and Costs in the First Two Years after Diagnosis. Curr Oncol 2022. https://pubmed.ncbi.nlm.nih.gov/35621650/
  • Vermaire (UMC Utrecht) et al. The course of swallowing problems in the first 2 years after diagnosis of head and neck cancer. Support Cancer Care 2022. https://pubmed.ncbi.nlm.nih.gov/36040669/
  • Vermaire (UMC Utrecht) et al. Factors associated with swallowing dysfunction in patients with head and neck cancer. Oral Dis 2022. https://pubmed.ncbi.nlm.nih.gov/35298058/
  • Vermaire (UMC Utrecht) et al. Factors associated with masticatory function as measured with the Mixing Ability Test in patients with head and neck cancer before and after treatment: a prospective cohort study. Support Care Cancer 2022. https://pubmed.ncbi.nlm.nih.gov/35106658/
  • Deuning-Smit (RadboudUMC) et al. Prospective longitudinal study on fear of cancer recurrence in patients newly diagnosed with head and neck cancer: Course, trajectories, and associated factors. Head Neck 2022. https://pubmed.ncbi.nlm.nih.gov/35084079/

2021

  • Verdonck-de Leeuw (AmsterdamUMC) et al. Associations between testosterone and patient reported sexual outcomes among male and female head and neck cancer patients before and six months after treatment: A pilot study. Oral Oncology 2021. https://pubmed.ncbi.nlm.nih.gov/34461364/
  • Piai (RadboudUMC) et al. Prevalence of neurocognitive and perceived speech deficits in patients with head and neck cancer before treatment: Associations with demographic, behavioral, and disease-related factors. Head Neck 2021. https://pubmed.ncbi.nlm.nih.gov/34799885/
  • Vermaire (UMC Utrecht) et al. Mastication, swallowing, and salivary flow in patients with head and neck cancer: objective tests versus patient‑reported outcomes. Support Care Cancer 2021. https://pubmed.ncbi.nlm.nih.gov/34170408/
  • Vermaire (UMC Utrecht) et al. Reliability of the 100 mL water swallow test in patients with head and neck cancer and healthy subjects. Head Neck 2021. https://pubmed.ncbi.nlm.nih.gov/33955058/

2020

  • Vermaire (UMCU) et al. Reliability of the mixing ability test testing masticatory performance in patients with head and neck cancer and healthy controls. J Oral Rehabil 2020. https://pubmed.ncbi.nlm.nih.gov/32495364/
  • Santoso (AmsterdamUMC) et al. Sleep quality trajectories from head and neck cancer diagnosis to six months after treatment. Oral Oncology 2021. https://pubmed.ncbi.nlm.nih.gov/33581506/
  • Santoso (AmsterdamUMC) et al. Poor sleep quality among newly diagnosed head and neck cancer patients: prevalence and associated factors. Support Care Cancer 2020. https://pubmed.ncbi.nlm.nih.gov/32566997/
  • Douma (AmsterdamUMC) et al. Physical activity with cancer: self-report versus accelerometer assessments. Support Care Cancer 2020. https://pubmed.ncbi.nlm.nih.gov/31820127/
  • Douma (AmsterdamUMC) et al. Demographic, clinical and lifestyle-related correlated of accelerometer assessed physical activity and fitness in newly diagnosed patients with head and neck cancer. Acta Oncologica 2020. https://pubmed.ncbi.nlm.nih.gov/31608747/

2019

  • Mirosevic (Radboudumc) et al. Prevalence and clinical and psychological correlates of high fear of cancer recurrence in patients newly diagnosed with head and neck cancer. Head Neck 2019.   https://pubmed.ncbi.nlm.nih.gov/31173429/
  • Piai (Radboudumc) et al. Assessment of Neurocognitive Impairment and Speech Functioning Before Head and Neck Cancer Treatment. JAMA Otolaryngology Head Neck Surg 2019.  https://pubmed.ncbi.nlm.nih.gov/30676629/