Table 4. Overview available samples and measurements caregivers
Biobank | ||
Subject | Oral rinse, Blood | |
Patient-reported outcome measures | ||
Subject | Instrument | |
Measured once: | ||
NQ_x101n | Demographics | Age and gender |
NQ_x103n | Education and literacy | Education and literacy |
NQ_x104n | Country of birth and family | Country of birth and family |
NQ_x105n | Diseases | Self-administered Comorbidity Questionnaire (SCQ) |
NQ_x112n | Personality (big five) | NEO Five Factor Inventory (NEO-FFI) |
NQ_x113n | Locus of control | Pearlin Schooler and Mastery Scale (PSMS) |
NQ_x115n | Coping | Utrecht Coping List (UCL) |
NQ_x116n | Social Desirability | Social desirability questionnaire (study-specific questionnaire) |
NQ_x127n | Fertility | Study-specific questionnaire (women only) |
Measured every time point: | ||
Questionnaire A | ||
NQ_x102n | Weight | Self-reported weight |
NQ_x106n | Smoking and nicotine dependence | Smoking habits (study-specific questionnaire) |
NQ_x107n | Alcohol intake and dependence | Alcohol (study-specific questionnaire) |
NQ_x108n | Drugs use | Drugs (study-specific questionnaire) |
NQ_x109n | Generic quality of life | EuroQol (EQ-5D + VAS) |
NQ_x110n | Disease-specific quality of life | EORTC QLQ-C30 |
NQ_x117n | Severity anxiety/depression | Hospital Anxiety and Depression Scale (HADS) |
NQ_x118n | Fatigue | Multidimensional Fatigue Inventory (MFI) |
NQ_x128n | Social support | Social Support List – Interactions (SSL-I12) |
NQ_x129n | Concerns about patient | Caregiver Reaction Assessment (CRA) |
NQ_x130n | Physical activity | Physical Activity Scale for the Elderly (PASE) |
Questionnaire B | ||
NQ_x202n | Participation | Impact on Participation and Autonomy (IPA) |
NQ_x203n | Self-perceived neurocognitive function | Cognitive Failures Questionnaire (CFQ) |
NQ_x204n | Self-efficacy | Generalized Self-Efficacy Scale (GSE) |
NQ_x205n | Sleep quality | Pittsburgh Sleep Quality Index (PSQI) |
NQ_x206n | Life events | Brugha/List of Threatening Experiences |
NQ_x208n | Loneliness | Loneliness Scale (de Jong Gierveld) |
NQ_x209n | Hearing | Caron |
NQ_x210n | Sexual functioning – men | International Index of Erectile Function (IIEF) |
NQ_x211n | Sexual functioning – women | Female Sexual Function Index (FSFI) |
NQ_x213n | Supportive care needs | Supportive Care Needs Survey Partners and Caregivers (SCNS-P&C) cancer module (SCNS-HNC) |
NQ_x214n | Leisure activities | Study-specific questionnaire |